Merry CHRISTmas

I just want to wish anyone and everyone who stumbles across this blog a Merry CHRISTmas.

If you happened to be offended at that phrase...BITE ME!!! It's my blog

I read this on a blog for parents of special needs kids:

I took a friend of mine who is visually impaired to church with me this morning. Several of the children in the congregation were fascinated with her Braille Bible. One of the adults came over to see what the kids were so excited about, and Ellen told the woman, "Oh, well, I was telling them how bumpy the road to salvation is."

Almost Alone at W x O

Last Saturday I was alone in Won by One with Michael. I love this kid. He's great. He plays catch, missies the ball, and runs after it with the biggest smile he can muster. He doesn't care about win/loss. He only wants to play.

Anyway, after awhile Nathan comes in too. Now Mike I could of handled, but Mike AND Nathan....

Then comes one more kid. I hate to say it, but I've forgotten his name off hand.

I called for help. And in comes Lori

Lori is an amazing lady...if you don't believe me...ask her. She's Michael's mom. And she is raising her other son, and she's actually married to their dad...HAPPILY.

No, I'm kidding. Adam is a great guy.

When my sister and her family were robbed, Adam sought me out to pray about it with me.

These are some great people.

God's good

See my sidebar for the Kinny Kids blog. Scott Kinny is my church's children's pastor. Looks like he's going to have some news for improvements to the Won by One ministry.

Thanks God

Me???

The kids ministry at my church has a monthly newsletter. They've chosen me for one of the spotlights for next mo. Wow. They need a picture. I hope I don't scare anyone.

Links in a Prayer Chain

On Tuesday, I sent out a prayer request via email to the children's workers of my church. It was for my sister, Melanie. Meme [as I call her] may have some form of kidney disease. We're still waiting word.

On Thursday, I came home to a letter [remember those?] from Wanda, it was dated on Wednesday.

She was wanting me to know she was in prayer for Meme.

Wanda's son is named Nathan. Nathan is 13 or 14 years old, but functionaly he's 1 or 2. I work with him and other special needs kids at our church she is truely a Godly woman.

Blake Update

We took Blake to John Hopkins in Baltimore, MD this past week for a second opinion. His last two treatments didn't work and he continues to get worse. It didn't go as well as we hoped. The doctor undiagnosed him and has no idea what is wrong with him. Since there is no longer a diagnosis, there is no prognosis, or treatment options. The doctor did take some bloodwork which we will get the results in two months. He also is writing a letter of recommendations to Blake's doctors for muscle and nerve tests. So we are back to square one with diagostic tests.

Blake's current condition is that he still can't walk, has between one and three episodes of pain or aggitation daily with his legs and sometimes arms, and is fed completely through a feeding tube. His behaviors have become so severe, that he was admitted recently for a five day stay at the psychiatric institute. He has regained some fine motor skills and continues to retain his cognitive skills fortunately. He is far from his baseline overall.