Blake Update

We took Blake to John Hopkins in Baltimore, MD this past week for a second opinion. His last two treatments didn't work and he continues to get worse. It didn't go as well as we hoped. The doctor undiagnosed him and has no idea what is wrong with him. Since there is no longer a diagnosis, there is no prognosis, or treatment options. The doctor did take some bloodwork which we will get the results in two months. He also is writing a letter of recommendations to Blake's doctors for muscle and nerve tests. So we are back to square one with diagostic tests.

Blake's current condition is that he still can't walk, has between one and three episodes of pain or aggitation daily with his legs and sometimes arms, and is fed completely through a feeding tube. His behaviors have become so severe, that he was admitted recently for a five day stay at the psychiatric institute. He has regained some fine motor skills and continues to retain his cognitive skills fortunately. He is far from his baseline overall.